Edward 'E.J.' Scott suffers from Choroideremia (CHM), a hereditary condition that also affects his brother and grandfather.
The disease robs sufferers of their vision, and Scott, 33, is now reduced to walking around with the aid of a stick.
Woll, 24, says, "He is so proactive about preparing for this inevitability in the face of something so scary. I can only be awed by his strength and commitment."
The actress is determined to use her fame to help his plight and that of other CHM sufferers - and has enlisted a True Blood fansite to drum up support for a sponsored diet he is undergoing.
There is hope on the horizon, researchers claim they are just years away from clinical trials for a potential cure.
Woll meanwhile, is using her beau's strength to inspire her own medical battle with Celiacs disease - a severe intolerance to food types.
She said, "I honour E.J. by being equally as strong in my much less life-changing predicament with Celiacs." (IG/NE/MT)